Why this matters
Keeping a simple record of your prescribed medical cannabis can make clinic reviews, pharmacy conversations, and travel much smoother. You do not need a complex system, a notebook, a notes app on your phone, or a folder for paperwork can be enough.
A good record helps you answer your prescriber’s questions about how you are getting on, without relying on memory. It can also help if you need to show proof of prescription or stock levels, for example when travelling abroad or ordering a repeat.
This guide explains the kinds of documents and notes that are useful to keep, without making you feel overburdened. It is based on what UK patients have found helpful in practice.
What should I actually keep?
Most patients find it useful to keep a mix of official documents and personal notes. You do not need to keep everything, start with what feels manageable.
Official documents to file (paper or digital copy):
- Your prescription paperwork from the clinic or pharmacy.
- Clinic letters or consultation summaries.
- Pharmacy labels from each product you receive. These show the product name, strength, batch number, and expiry date. See our guide on how to read a medical cannabis prescription label for more detail.
- Any travel letters from your clinic (if you plan to travel with your medication). See our guide on travelling with prescribed medical cannabis.
Personal notes to consider keeping:
- The date you started a new product or batch.
- Any side effects you notice, and when they happened.
- Brief notes on how you feel the medication is affecting you, for example, changes in sleep, pain, or anxiety. Keep these simple: a few words or a rating out of 10 can be enough.
- Stock or usage notes. Some patients find it helpful to track how much they have used and how much remains, especially when ordering repeats. This is a private record for your own use.
How to organise it without it becoming a chore
The key is to keep it simple. Here are a few approaches that UK patients use:
- A notebook kept with your medication. Write the date and a short note each time you use a product. This can be as simple as “Product A, 0.1g, 8pm, slept well.”
- A notes app on your phone. Use a single note per month or per product. Add entries with the date and time.
- A folder (physical or digital) for official documents. Keep your prescription, clinic letters, and pharmacy labels together. A clear plastic wallet or a folder on your phone works well.
You do not need to record every single use. Many patients find it helpful to note patterns, for example, “this week I needed less during the day” or “I had a headache after using product X.”
What to ask your clinic or pharmacy
- “Do you provide a summary letter after each consultation that I can keep for my records?”
- “Can you send me a copy of my prescription and the pharmacy label information?”
- “If I need a travel letter, what information do you need from me, and how long does it take to issue?”
- “Is there a standard way you recommend I track my usage for our reviews?”
What this guide cannot decide for you
This guide cannot tell you what to record, how often to record it, or what your personal notes mean. It cannot promise that any record will be accepted by a border official, a clinic, or a pharmacy. It cannot advise you on changing your dose, product, or timing based on your notes, only your prescriber can do that.
Your medical cannabis record is a private tool for your own use. It is not a substitute for professional medical advice or a formal medication diary required by your clinic.
Read next
- What to keep in your medical cannabis records
- How to read a medical cannabis prescription label
- Travelling with prescribed medical cannabis
Sources
- NHS medical cannabis overview: https://www.nhs.uk/medicines/medical-cannabis/
- NICE guideline NG144: https://www.nice.org.uk/guidance/ng144
- NHS England long read on CBPMs: https://www.england.nhs.uk/long-read/cannabis-based-products-for-medicinal-use-cbpms/
- GMC information for doctors on CBPMs: https://www.gmc-uk.org/professional-standards/learning-materials/information-for-doctors-on-cannabis-based-products-for-medicinal-use
- CQC guidance on CBPMs: https://www.cqc.org.uk/guidance-providers/healthcare/cannabis-based-medicinal-products-what-cqc-expects-providers
Where to go next
- Patient Guide – start from the main MCPH pathway hub.
- Patient Guide – Main pathway hub
- Cannabis for endometriosis: what the evidence can and cannot say – Related MCPH guide
- An introduction to the endocannabinoid system – Related MCPH guide
- How the UK medical cannabis prescription process works – Related MCPH guide